Posts Tagged: research

News

‘Bubble baby’ treatment shifted to stem cell agency, UCLA

Evangelina Padilla-Vaccaro’s medical team gathers around her on the day she received her gene-therapy stem-cell transplant. (Photo: Padilla-Vaccaro family, via UCLA Health)

A London-based biotech firm has given up its life-saving treatment for the bubble baby disease and turned it over to California’s $12 billion stem cell agency and UCLA, where it was developed with tens of millions of taxpayer dollars.

Opinion

Rare-disease patients seek lawmakers’ support

A medical technician prepares to draw blood from a patient. (Photo: Ruchuda Boonplien, via Shutterstock)

OPINION: The worry of a mother for her child never ends. I am the sole caretaker of my adult daughter who suffers from multiple rare diseases. Her conditions hold her from living independently. During her 35 years of life and her 12 years of living with her chronic conditions, I cannot remember the many times that she almost died.

News

Tangled tale: Research, profits and the ‘bubble baby’ syndrome

Evangelina, a former 'bubble baby,' plays inside a giant plastic bubble. (Photo: Stem Cellar Report, CIRM)

Little Evangelina Padilla-Vaccaro is more than a poster girl for the $12 billion California stem cell agency. She embodies a big bet by the agency that its efforts will conquer at least a few of the terrible diseases that are currently incurable. In the case of Evie, as the eight-year-old is known, she was born with what has come to be described as the bubble baby syndrome, a rare genetic mutation that crippled her immune system to the point that she would have died if left untreated.

News

UC Davis: First clinical trial of stem cells to treat spina bifida

A stem cell researcher at UC Davis. (Photo: AJ Cheline, UC Davis, via The Stem Cellar)

Backed by $17 million in cash from California’s stem cell agency, researchers at UC Davis this month are launching “the world’s first clinical trial using stem cells to treat spina bifida before the child is born.”

Opinion

Prop. 14 will continue CA’s life-saving stem cell research

A liquid nitrogen bank containing a suspension of stem cells. (Photo: Elena Pavlovich, via Shutterstock)

OPINION: The Golden State boasts the 5th largest economy, the biggest and best public university systems and, thanks to support from California voters, it’s the global epicenter for advancing stem cell research and treatments for chronic diseases and conditions that will afflict nearly all California families.

News

Legislative Counsel: A tale of the bill drafter

The state Capitol in Sacramento, home of the Legislature. (Photo: SchnepfDesign, via Shutterstock))

In the California Legislature, all types of legislative measures (bills, resolutions and constitutional amendments), as well amendments to those measures, can only be introduced or processed if they are in “Legislative Counsel form.” The purpose is to ensure greater consistency in California’s statutes. The nonpartisan Office of the Legislative Counsel serves as legal counsel and bill drafters to California legislators and the governor.

News

CA120: Voter registration at highest portion of eligibles in 80 years

A potential voter fills out a voter registration form. (Photo: Rawpixel, com, via Shutterstock)

California has now reached an historic high of over 21 million registered voters. The current PDI voter file, after a full refresh of county files, puts total voter registration at 21,086,077. As a share of eligible voters, this puts the state at 83%, a higher rate of registration than we have seen since the presidential election of 1940.

News

Ballot battle underway to keep stem cell agency alive

DNA is injected into a stem cell. (Photo: Spectral-Design, via Shuttertock)

The California stem cell agency has just finished pumping $5.3 million into the fight to save the lives of Covid-19 victims. And — in a ballot-box bonus — its efforts are already surfacing in the ballot campaign to rescue the agency from its own demise. The agency is running out of money. It will begin closing its doors this fall without major financial support that it hopes will come from Proposition 14, a $5.5 billion bond measure on the November ballot.

News

For survival, stem cell agency hunts for ‘wet signatures’

Robert Klein, who spent six years as the state stem cell agency's chairman, addresses issues related to the November ballot initiative. (Photo: David Jensen, California Stem Cell Report)

The folks who are trying to save the $3 billion California stem cell agency from financial extinction are using a well-worn technique that goes back to ancient Egypt, at least by some accounts. It is expensive, depending on what you are peddling, and generates a return as low as 1 percent. It is direct mail, but with a significant twist.

News

Stem cell agency OKs $5 million for COVID-19 research

Illustration: Aleksey Novikov, via Shutterstock),

California’s stem cell agency, in an emergency action, has allocated $5 million for research into treatments for Covid-19 and set the deadline for the first applications for one week from today. The California Institute for Regenerative Medicine (CIRM) approved the funding Friday during an emergency meeting of its governing board. 

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